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CDKL5 UK and Heartlix.org
Heartlix is a dedicated crowdfunding platform specifically designed for fundraisers to publicise their cause and fund raise direct for CDKL5 UK. This not only cuts out the middle man costs, but also gives your donors a one stop shop to find out more about the condition, read patient stories, and have access to news and blogs which link from the CDKL5 UK website www.curecdkl5.org. By fundraising using our Heartlix platform, you will raise even more money for CDKL5 UK and CDKL5 research and support - and that’s surely what it’s all about.
CDKL5 UK has some great events planned for 2017 and you can be part of it. so be sure to save this website to your browser and favourites. For an ultra-rare disorder, it is important we work together. CDKL5 UK are working with all the other European CDKL5 patient organisations, and also with the LouLou Foundation, whose sole aim is to advance CDKL5 research. So be part of our cause, become a #CDKL5Champion as #togetherwearestronger
CDKL5 UK has some great events planned for the coming year, and you can be part of it. so be sure to save this website to your browser and favourites. For a ultra rare disorder, it is important we work together as CDKL5 UK are - working with the other European CDKL5 patient organisations, and the LouLou Foundation whose sole aim is to advance CDKL5 research. So be part of our cause, become a #CDKL5Champion, as #togetherwearestronger
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Children and adults living with CDKL5 deficiency disorder need our help. We can only do that with YOUR help.
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